I’m posting a few days late, but we started phase three on Friday! This phase will mean a dose of two different types of chemo through her port every ten days, as long as her numbers recover enough before each appointment. If not they’ll delay it for four days and check again. We’ll do this five times. The best part is no more meds at home besides an antibiotic on Monday’s and Tuesday’s. It hit me when our home care nurse said that we’ve been doing this for two months that we’re one third of the way through this first six months of treatment!
Lydia is feeling so much better! She’s almost completely recovered from the steroids. She’s walking and running, riding her scooter again and even carefully going up and down the stairs. Her sweet personality is back with her funny sense of humor. It’s wonderful to hear her laugh and sing again!
These pictures are of her beads of courage necklace they gave her at the hospital on Friday. She was actually excited to put it together, just not to have her picture taken. 😊 She got a bead for every test, procedure, “round of chemo”, IV, dressing change, steroids, surgery, etc. that she’s gone through. She got FIFTY-THREE beads. She worked on it while we were waiting for her chemo. You can see her port accessed just above her collar. They access it at the clinic to draw labs and give her chemo, and de-access before we go home. She’s been great with getting it accessed- the worst part is getting the dressing pulled off when they take it off.
Thanks again for all of your support and prayers! We feel so blessed with how things are going. We’ve settled into our “new normal” and our family is doing well.
